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Cystic fibrosis is the most common life-limiting genetic condition in the UK. As the country’s leading charity dedicated to CF, our volunteers, Trustees and staff are working hand in hand with our community to address the challenges it presents and seize exciting new opportunities to make a real change.

As a result of three of our current Trustees completing their normal terms of office, we are now looking for new Trustees to join our Board. We have a number of vacancies and are particularly interested in those who can offer:

  • experience of creative marketing and communication skills, and using digital tools to drive transformation;
  • an ability to promote the Trust and the needs of people living with CF to a range of external stakeholders, including influencing their behaviour;
  • to contribute actively to the Board of Trustees’ role of giving strategic direction to the organisation, setting overall policy, defining goals, setting targets and evaluating performance against agreed targets;
  • be willing and able to use any specific knowledge or experience they may have to help the Board of Trustees reach sound decisions. This will involve scrutinising board papers, leading discussions, focusing on key issues and providing advice and guidance requested by the board or the Chief Executive in areas where the Trustee might add value and insight to deliberations;
  • experience of diversity and inclusion within organisations.

About the role

As a member of the Board of Trustees, you will have specific statutory duties, such as ensuring that we comply with charity and company law and that we use our resources responsibly to achieve our aims. Trustees serve for three years with the opportunity of a second term for a further three years.

Although our Head Office is in London, our community is spread across the UK and we are keen to reflect that regional diversity on our Board. With virtual meeting spaces, teleconferencing facilities and reasonable travelling expenses available, applicants are encouraged regardless of geographical location.

This is a voluntary role that is unpaid, but you can claim reasonable expenses if required, such as travel to attend meetings in person.

Closing date

Applications for this post closed 10:00am on Friday 26th February 2021