Myeloma UK is the only organisation in the UK dealing exclusively with myeloma – the second most common form of blood cancer. It originates in the bone marrow and currently affects around 17,500 people in the UK. Whilst treatable, myeloma is not yet curable.
Our ultimate goal is to find a cure. We are dedicated to ensuring that patients get access to the right treatment at the right time, and to improving standards of treatment and care through research, education and awareness raising. We also provide a range of information and support services to patients, family and friends to help deal with a diagnosis of myeloma.
The Patient Advocacy team works to ensure that the patient voice is heard and acted upon by key decision makers. We ensure the needs and priorities of patients are understood, represented, valued and addressed in developing treatment and care.
About the role
This is an exciting opportunity to join a driven and dynamic team, to progress your professional career in patient advocacy. The post holder will have lead responsibility for our advocacy and policy agenda in devolved nations but will also work on health policy in England. The role has a particular focus on improving access to new medicines; gathering patient insight and preparing submissions for the UK’s drug approval bodies.
You will have experience of analysing, developing and communicating policy. Previous experience within the health policy or patient advocacy environment would also be an advantage.
You will have excellent communication and influencing skills with the ability to communicate at all levels and present to a wide range of audiences. You will need excellent analytical skills and be able to quickly and accurately summarise complex policy documents. A proven awareness of appropriate evidence sources and research methods in health and social care are required for this role.
You will be highly organised with excellent attention to detail. Our medicines access work in particular requires an interest in and facility for complex and technical processes. You will also have the ability to develop your work load, manage a wide range of tasks, and prioritise effectively. The ability to work well under pressure is essential for this role.